Tuesday, January 27, 2015

Mustard Seed



Last week, after I told my radiologist that I was having headaches, I went in for a MRI.  I have a couple wisdom teeth that have decided to attempt to squish themselves into my already overcrowded mouth.  I explained my headaches away as the result of the impacted wisdom teeth.  Dr. Ahuja thought we should be safe and get a MRI to check it out...just to make sure.

On Tuesday he called and said the MRI indicates some abnormal activity in my skull base and spine and would like me to have a bone scan.

NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!

(Ok, I'll be there.)

My co-worker brought me a mustard seed.  With tears in his eyes, he told me to hold on tight to my faith.  Let's move this mountain. 


Matthew 17:19-21 Jesus Heals a Boy with a Demon
19Then the disciples came to Jesus privately and said, "Why could we not drive it out?" 20And He said to them, "Because of the littleness of your faith; for truly I say to you, if you have faith the size of a mustard seed, you will say to this mountain, 'Move from here to there,' and it will move; and nothing will be impossible to you. 21"But this kind does not go out except by prayer and fasting."

 So, Friday morning I went for the bone scan. 

 In and out of the tube.  In and out of the thoughts running wild in my head.
 Think of Florida, the beach was so perfect and so relaxing when I went last year with the bearded man.  I don't have any new pain.  I don't have any new signs or symptoms other than a mild headache.  This can't be happening!!
 But, I watched the screen as the rad tech snapped his fingers to "Only the Good Die Young".  (NO, I'm NOT shitting you.  This song was playing and he was actually snapping his fingers to the beat.  I pictured him behind me dancing.  I wanted to scream: I'm 33!! Aren't you looking at the imaging!?! I can see the spots, can't you!?! STOP SINGING!!!)
 And the test went ON AND ON AND ON.  When he said he needed more shots of my hips, I said something like: yeah, I saw the hot spots while you were scanning.  He tried to explain that he is just very thorough.  I promptly called him a liar.

I have read the report.  I have multiple hot spots on my bones.  On my 33 year old bones, there are hot spots where cancer is growing.  They are called bone mets.

Fuck cancer.


Last night was the second most difficult day of my life.  I told my beautiful little babies that the cancer is back.  This time they know what it entails and had many more questions.

Will you die?

Does this run in our family?

Who will take care of us if you die?

Will you lose your hair again?

Will you be weak? Can we still hug you and cuddle you?  Will you tell our teachers in case we are sad? Can I tell my friends so that they can comfort me?

So.many.questions.

So.few.answers.

So many tears.  Never enough years.

Right now, we are still on the way up a VERY big hill on this rollercoaster.  I have a petscan tomorrow to see if the (#*$&#)@(*$& cancer cells are growing anywhere else.  I have appointments to come up with a plan of action Thursday and Friday. 

The plan is no longer in hopes of a cure, but the extension of quality life with my loved ones.  I know multiple woman living with metastatic breast cancer for many, many years.  I plan to be one of them and will continue to hope and pray for a cure in the meantime.

I have yelled at God. I have questioned why!!

But, I have decided it will do much more good if I relax and talk to him instead.  Tell him all of the many reasons I need him to cure me. That I need Him to give me more time here.  I have so much I want to do still and say.

Please join me.  Talk to Him.  Tell Him we need more time. Even if your faith is as tiny as that little mustard seed in the picture above. Hold tight to faith.


Hope-Faith-Love

XOXO,

Tuesday, January 13, 2015

Encourage


Just breathe. LOVE. Survive.  BELIEVE.

Without actually stating aloud a mantra each year, I have embraced one or two mantras the last few years.  "Just breathe" was swirling around in my head as I said goodbye to my dad; as I wished and prayed for his peace. "LOVE" took over in the year or so after he passed as I tried my hardest to concentrate on the love that surrounded me and "my people". I didn't choose "survive", it chose me.  Yet, I certainly did live it in 2013.  I hope I always have "believe" in my thoughts and in my heart, but I tried to focus a lot of energy on it as I paved my path to my "new normal" in 2014.

I've been trying to think of what word/phrase I want to concentrate this year and I think I have it.

 ENCOURAGE

So many times in life I catch myself competing.  Against my peers at the office and in the legal industry.  Against my husband for a war I really shouldn't WANT to win: who does more in the household to make it run effectively. Against other moms that are more creative and crafty than I am.  Against other woman that are more in shape and in style than I am (obviously, this is not a hard task if you take a glance at my facebook page and see my AWESOME gaucho pants).  Against other marriages to see how my own marriage matches up.  Against other friends for attention and time that seems to be so hard to find these days between the schedules we keep. Against my very own mind to feel accomplished/enough/satisfied.

I often read the encouraging words on Pinterest and pin them to a Pinterest board as a reminder to myself.  I write little encouraging notes to myself in my planner and in my faith journal.   I speak encouraging words often to my monsters, spouse, family and friends.

Yet, I often find myself fighting the urge to rise up and attack when push comes to shove.  In all honesty, I would have to admit that one of my coping mechanisms is deflection.  It's pretty easy for me to sway an argument in my favor when I use deflection and/or talk down to the person I am communicating with.  Aaron has called me out on this behavior multiple times and I try really hard not to speak to him in a demeaning and venomous tone anymore.  Still, it is very easy for me to revert to deflection and use a demeaning tone when I am feeling defensive or insecure.

In an attempt to have more authentic and real relationships with my loved ones, I am going to concentrate on "ENCOURAGE" this year with the notion that it will be contagious.

Before I react, I am going to think of ways to find the good, concentrate on building others up and encourage them.  Rather than defense, I want to play offense using encouragement.

I've started testing this word: encourage.  Most of the time, encouraging behavior comes natural to me.  However, when I'm insecure and unsure, it's difficult for me to do.  When my feelers are hurting, it is hard to step away and find something positive to focus on.  I have a hard time keeping my BIG MOUTH shut long enough to listen.  I realize that I'm going to slip up and make mistakes, but I'm going to forgive myself and encourage myself to try harder and do better.  I'm still going to be in competition, but competition only with myself.

So, I'm not really making any resolutions this year.  Usually, I vow to eat clean, workout or schedule weekends of nothing, but I'm going to be gentle on myself this year.  Instead of giving up food I love or clearing my schedule, I'm going to focus my energy on encouraging myself and others.

Enjoy
Nice
Communication
Of
Understanding,
Reassurance,
Appreciation, (and)
Genuine
Encouragement.

Encourage positive change.  
Encourage hard work and dedication.  
Encourage learning and creativity. 
Encourage love and forgiveness. 

XOXO,







PS: I haven't check in health wise in quite a while.  Positive check up with plastic surgeon last week.  My insurance has approved the final step in foob creation and I selected a date to have (HOPEFULLY) my last foob surgery in a few months. I am clear to workout, but it's so much easier to sit on the couch;) I have a follow-up with my radiation oncologist this week and then I should be free of appointments for a few months! Overall though, my health looks good.  I have a few side effects from the maintenance drugs that are annoying, but manageable.

Nina has ENCOURAGED me to blow dry and use a straightener on my hair, but like I said, I'm not really that great at listening!! She probably wishes I would inquire about her amazing foundation (or eyeliner, mascara, blush, nail polish remover or hair product too):))  I'm just trying to encourage this year though!! Sheesh!