So much happens in a week

I will try to make this flow, but there are simply too many things that happen in a week these days to concentrate on one subject!

The day that I could honestly say that I felt 100% was the day prior to my next treatment.  Exactly when you start to feel normal, it's time for another treatment.  LOVELY. My mother joined us at Club Chemo this time:

 The roll in the picture below was not there prior to chemo.  Stop sending sweets!  My pants will not fit soon!!

 Attempting to read, but Club Chemo is too loud...I think it's a Runion thing;)  Beautiful blanket that my friend Andrea made:)

 Aaron thinks this is his lucky shirt...so he'll be in this in every picture of him;)

 Lainer always brings food...also contributing to my lack of waist line.

 Jake pretends to be important, but we all know that he isn't;) Loving my "STRONG" socks from the Schnables. I'm packing them for every treatment!

 

 

Day 14 went by and my hair was still holding strong.  I think maybe everyone dreams that they will be the one patient that doesn't lose their hair, but the next day it was coming out in clumps.   Rather than literally pull my hair out, we shaved our heads.  The kids liked to shave Daddy's, but the girls decided they wanted to be the photographers while Mommy took her turn:

 

Everyone tensed up a bit when it was Mommy's turn, but we still smiled through the event:

Keegs LOVED shaving our heads, but when we asked him if he wanted to shave his pretty blond curls he said NO WAY!!!

 

Jake surprised me and played too:

 

Thursday night I was still feeling pretty well, but this treatment decided to test how tough I am.  A little aching for a day or so wasn't enough the first time around.  This time the aching and pounding headache decided it wanted to stick around a few days and be more constant and annoying.  We still managed to function as a family and spent time shopping for Mother's Day.  We attended a wedding and the play "Annie" (Phoebe Jackson played Annie and she was amazing:)) and my father-in-law cooked the most delicious meal for all of us.

 

It's Monday now and I'm finishing this post from my office.  Back to work, it's Monday!  Still not feeling great, but much better than this weekend.   It's quiet in my office and the work is a nice distraction to the racing thoughts in my head.

 

One other thing I need...I know I've been greedy with prayers lately, but I need more.  Friday night I tucked the headache away for a visit with another young mother that is fighting her own battle with the stupid C word.  She has already had a couple major surgeries and starts her chemo on Wednesday.  I'm asking all of my prayer warriors to add her to your prayer list as well.  She chopped 16 inches of her beautiful long hair and is donating it. Please keep her in your thoughts this week as the first treatment is scary! 

 

Many, many BIG BOLD prayers to this beautiful young mother, Rhiannon:

 

 

 

Philippians 4:6

New International Version (NIV)

⁶ Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God.

 

At a Loss for Words...

Speechless really doesn't happen to me often, well, honestly, I can't remember many times when I've been speechless. I always have something to say.  Most of the time I don't really care if you want to hear it or not, I say it.

But the events over the last weekend, I really don't have any words for.  When Marci asked me to come over, first she tried to play it off like it was going to be just me and the kids to hang out.  I thought, "Ok, cool.  Aaron's going out with friends, I'd love to hang out with Marc." 

Then Tam texted me and said she was coming home so I asked Marci if Tam could come along and she responded: "Sure, invite your mom, too!"

Immediately, I knew they were surprising me.  I do NOT like surprises.  So, I got bitchy and said something along the lines of:"I know you're having a stupid hat party.  I wasn't born yesterday." 

They went along with it.  "Ok, fine, it's not a surprise and yes a few other people are coming."

I complained to the secretaries at my office that I had to go to a stupid hat party and I still want to throw my wig in the fire (AND AS SOON AS MY HAIR GROWS BACK, I MIGHT, but it would be more responsible to donate it, I suppose;)).

Except only a few people brought scarfs and nobody brought a hat! 

Instead, they brought this cute little tree that I recognized.  I made it for someone else when they were going through cancer treatment.  Only this time it was full of gift cards and VERY, VERY generous donations for ME.

The next day I opened the mail to even more VERY, VERY generous donations...from a couple of friends and people that I have never met before in my life.  People that are friends of friends that wanted to give.  There are many names on the giving tree that I don't know either.  COMPLETE STRANGERS compelled to give in the name of HOPE.

Humble-thankful-blessed-overwhelmingly grateful- these words do not even begin describe the way I feel right now. It is very difficult for me to be on this side of the giving tree.  When someone is having a hard time, I'm always ready and willing to help, but I've never been in the position where I'm the one in need.  

I remember when we gave the giving tree to Ash and Danny and Ash said to me that she doesn't know how she will ever be able to repay the kindness and love that was extended to them during their time in the wilderness.  I told her that she already was repaying everyone: witnessing her attitude, her faith, her smile, that's all the repayment we could ever ask for.  I told her that the next time someone is diagnosed with the stupid C word that they should share their story of triumph over trials and be there to support the next warrior.

I didn't know it would be me.

But it is and now I feel the same way.  How can I ever repay all the kindness we have received?  I have a basket overflowing with greeting cards from people spanning the entire United States.  I have blankets, scarfs, books, bags, pins, bracelets, gift cards, more than half of our insurance deductible PAID, socks and ribbons and hair pretties and journals and COOKIES AND CANDY AND CAKE (I will most likely be the rare patient that gains weight on chemo!!!).  So many reminders of all of the love that is surrounding me and my family during this trial.

And I just don't know if I will ever be able to explain how incredibly grateful we feel to have such an amazing support group.

For once, I am at a loss for words, but with all the love I have to give and from the bottom of my heart:

THANK YOU!! THANK YOU!! THANK YOU!!

 

We spent the beautiful weekend outside and we played hard!! 

Sleeping beauty cuddled with Mommy: Camille

 

Lilly and I read books on the porch

 

Keegers helped plant flowers (Aaron thinks the bush that Jill Bench donated is already growing!!) all day and fell asleep doing a breathing treatment:

 

 Some of the cute things we received this weekend.  LOVE the personalization you picked, Sherry;)

 

Loved working shorter hours last week...lots of extra time to cuddle my monsters

 

Spiritual Retreat with Aaron and many of my favs from church

 

Feeling 100% today...just in time for the next treatment.  I have tugged on my hair a couple times and it's staying in there.  Might get to push the head shaving back a couple days!!  Chemo tomorrow.  Hope and pray that I tolerate all of the treatments as well as the first!

 

 

Sick Cancer Humor #1

WIN: When you're on chemo it shocks your body.  For females, that also means NO "That time of the month".  YES!! Score!  I don't have to think about when I wear white pants.  I can wear them whenever I feel like it!  I'll wear them today!

FAIL: Black polka dot underwear still show in white pants.

Ya win some, ya lose some!

 

I hope my chin hair doesn't grow back.

I hope my chin hair doesn't grow back.

Since people are waiting on me to write now, I'll try to focus long enough to write a post each week. That's been my goal since I started blogging a few years ago, but I'm not making any promises. Right now my mind is in overdrive and picking just ONE topic to write about is kind of difficult!

This week my biggest concern is HAIR LOSS, so we'll go with that.

I'm not a fancy girl. I rarely remember to accessorize (even though I have a ton of jewelry...in my defense it's because a couple friends make jewelry and other people buy it for me). I wear minimal makeup, but ALWAYS wear my mascara because one of my friends will disown me if I don't. 95% of the time I drive to work with my hair sopping wet and throw it in a pony tail or braid after I've been at work for a few hours.

So, it seems like I'm a good person to survive hair loss. My cousin's eyebrows never grew back after chemo. Yes, ALL of my hair for those of you wondering.  My eyebrows and eyelashes and everywhere else I currently have hair-gone!  I HOPE my chin hair doesn't grow back after chemo!! :)

Even though I'm not fancy and I'm not all about hair, I feel pretty confident stating that ANY woman would have a rough time with this. I've only really cried about this small step in treatment with Heid a couple times. For the most part, I'm trying to make it fun and trying to laugh in the face of fear, but in my subconscious, I'm scared.

A couple friends tried on head scarfs when they were babysitting ME and we laughed and laughed at how silly they looked. One has a big head and the other has always had long hair...they looked funny! BUT, this is going to be my life in ONE WEEK. Next Wednesday is the day my doctor said I should shave my head because it will start falling out in clumps. One more week and my pretty highlights will be gone and replaced with a wig, a scarf, a chemo beanie or BALD.

NO HAIR. Even if I don't like to do my hair, that's a lot to swallow.

But, if I want to live, it's necessary, so I invited a few of my friends and my daughters to go wig shopping. Lilly insisted on bringing her friend, Paige, because she knows EVERYTHING about style! So we loaded a couple cars and went to Renee's Survivor Shop. Renee, a breast cancer survivor, was wonderful: calm, compassionate, open and honest.

http://www.rsurvivorshop.com/

She dealt (I use "dealt" in the nicest way possible, because some of my friends (MYSELF INCLUDED) can be a little overwhelming. Especially when we're all together;)) with me and all of my loud, crazy, beautiful friends nicely and placed wig after wig on my head. I tried on one that looked like a golden retriever, one that looked like Joe Dirt and a couple that looked ok. I ended up picking a longer one that I'll be able to braid and put in a pony tail.

Camille is so sweet and loving, but she's a little overwhelmed with all of the cancer attention. She waited until all of my friends left the wig room and hugged me ever so gently. She told me she'd rather have me wear the chemo beanie than the wig. She doesn't think that the wig looks like me, but the beanie looks like me. I don't know yet, but I'm thinking my quiet five year old is probably right. I'll probably wear the scarfs and beanies much more than the expensive wig, but I needed the wig. I need to feel prepared, have my plan of attack ready for next week when Aaron shaves the last of my blond hair off.


Wig shopping and then ice cream: peanut butter-hot fudge-hand scooped milkshakes make any day better!! :)

The wig I picked (still not real sure about it, obviously):

After wig shopping and spending time with my girlfriends and girlies, Aaron asked me how it went. I told him that it was fine and we picked the one we thought looked best, but then I opened the box with the wig in it and started to cry. He hugged me and told me that it doesn't matter what my hair looks like. I'll always be pretty. He reminded me how I do not like to shave my legs and that he'll love me no matter what.

BUT, losing your hair is still difficult. Even if my chin hair doesn't grow back!

My doctor said that some women find it easier to gradually go shorter...so I'm giving it a whirl:

My beautiful cousin texted me after I posted the above picture to facebook: How are you? Fine or fake fine?

The honest answer is somewhere in between. I sat in a dark room for a half hour before I posted the picture. I thought to myself: "It's just hair!" "It will grow back!" "Stop being vain!" "It could be worse." "This is going to cure it!"

And then I was ok.

This morning I did my hair in 3 minutes AND I'm getting used to it. When I looked at my reflection in a city street window I thought, "Ok, I can do this!"

Kiss my ass, cancer! I'm not scared.

But, I won't be sad if my chin hair doesn't grow back!

Club Chemo

When they told me that I had cancer, I texted Britt.  I needed a few pictures.  For me?  For the kids?  I don't know.  I need them to remember normal.  I need to remember normal.  People always talk about life BEFORE cancer and LIVING with cancer.  There's a big difference.  Now, I'm living it.

Britt squeezed us in, wore a pink hope shirt and refused payment...I am not sure that she'll ever know how much the pictures mean to me.

 

 

Soon enough though, "normal" was simply make believe.  My phone was ringing nonstop on Tuesday morning as we tried to set up all of the insurance and doctors and testing.  I was able to wrap most of the work that HAD to be completed before I took off prior to leaving, but I do have a few loose ends that are driving me batty.  When I left work, I was still feeling overwhelmed, but really I couldn't have concentrated on another task if I would have been able to stay and attempt to work.

 

Either way, I had to leave earlier than I intended to and Wednesday morning would come all too soon.  PARTIALLY because my oldest decided that it was just a GRAND time to get sick.  She also decided to attempt to make it to the bathroom each time verses simply throwing up in the puke bowl I had oh so gently placed next to her when she told me that she wasn't feeling well.  Instead, she thought the carpet...and her bedding...and the hallway carpet...and the rugs in the bathroom...and the floor in the bathroom...and of course the toilet ALL needed to be washed and sanitized.  THE DAY BEFORE I RECEIVE MY FIRST CHEMO TREATMENT.

 

Hey, why freaking not??  It was like your worst nightmare on crack, but I didn't even question it.  I continued to talk to some of my girlfriends like: Hey, this happens every day, right??  Thanks for cleaning up the kitchen and reminding me to breathe, Amanda, Krista and Marc.   Thanks for coming as soon as I texted you, Heid and Stace.  Next time I'll wait a few more minutes and let you guys clean up the puke;)

 

So, like it or not, Wednesday morning was there.  Bright and early, with pouring rain as Cleveland has greeted us with both times we've made the trip so far.  Nervous, tired, scared, but also so very loved.  Aaron cleaned and organized our room and all of my appointments are mapped out on a handy app (he uses his phone to do things other than facebook...I'm not sure why? ;)). Heidi loaded the car with a reassuring smile and choked down all the pain that my fight is bringing back to life for her.

 

Jake and Laine were both there to greet me after my echo cardiogram.  An echo cardiogram is a simple test for most people.  They were all very anxious to see me when I walked out because we all THOUGHT this test would take 20 minutes or so.  Of course this is on a normal person!  My ribs are too close together and the ultrasound beams couldn't penetrate accurately.  Instead I received poke #1 of 3 so that they could shoot some dye into me and get a better baseline of my heart...GAHHHH...COME ON.  JUST SOMETHING RUN SMOOTHLY, PLEASE?!?!?

 

Baby brother.

Once we started meeting with my team, things looked up.  Well, I guess that's a lie. AFTER the assistant to my nurse read my survey and told me that I had to meet with a social worker because I scored my anxiety at a 10 and I FLIPPED out on him. I told him that I had more than sufficient (I made him add MORE THAN) support and did not need one more person to talk to:)) After that, my nurse "slipped" and said she thought I was Her2 negative.  I tried not to get my hopes up, but good GOD was I praying that she was right.  SHE WAS:HER2 Negative!

My nurse, Nancy (Heidi thinks she's a paparazzi and I'm a movie star):
















After we completed the crash course, Chemo 101, we also met with my WONDERFUL doctor.  She's amazing.  She confirmed what Nancy had let slip and we all breathed a big sigh of relief.  Less treatment and a little less aggressive without the lovely HER2 and we're clinging to the good when we get it!


Perfect timing by one of my forever friends and sister when we want to play with people.  When you're at the clinic, you have appointment after appointment.  SOMEHOW, my beautiful friend met us smiling just as we were walking into the room before chemo.  Thanks, Kate.  Love you so much and I can't wait to open the bottle when this is all done!

But then the buzzer sounded (yes, the clinic uses buzzers) and it was my turn.  CRAP!  CRAP it's my turn.  Do you think people turn back when they are this far?  I probably would if I didn't have the three most beautiful babies to care for.   But, I do.  And they are worth it.

 

Trying to recreate what Britt did...unsuccessfully:)

After much discussion about my first IV and a failed attempt by nurse Katie, they went with my first IV of the day.  Half way through the treatment it didn't hold up. So they switched arms.  I'm attempting to do this treatment without a port.  Selfishly, they are already going to make enough scars on my young body and if I can avoid one, I'm going to give it a shot!

Sleeping peacefully...CLUB CHEMO.  WOOT FREAKING WOOT!! ;)

 

 

We tried to move chemo to Thursday for our convenience, but the bar owners are not listening to the customer demands. Everyone knows that the clubs are more rocking on Thursdays than they are on Wednesdays!! But the Clyde Quick Trip isn't open on Fridays.  So, we're going to continue to visit Club Chemo every other Wednesday followed by a stop at Clyde Quick Trip on the following Thursday! The day after chemo I have to get a shot of Nuelasta that helps to regenerate white blood cells...and makes my body feel like I have needles in my bones.

The treatment plan:

ACT Chemotherapy stands for A-Adriamycin, C-Cytoxan, T-Taxol

My first dose of A&C was administered Wednesday, April 24th.  I will receive 3 more doses of this cancer killing concoction over the next 7 weeks.  Next, they will switch it up a little and give me the T drug for another 4 doses, every other week.   This is protocol for the type of breast cancer that I have (Invasive Ductal Carcinoma: Estrogen-receptor positive (ER+), Progestrone-receptor positive (PR+), AND HER2-NEGATIVE!)  Her2 Negative was a big positive we learned before receiving my first treatment.  If I would have been positive, it would have added another 8 weeks of chemo AND nine months of hormone therapy at the tail end of treatment.  If my body is able to take all of the doses  without delay, the last chemo will be August 1st.

After chemo is completed, they will give me a small break for my body to recover and prepare for surgery.   When my body is ready, I will have a double mastectomy and reconstruction at the same time.   We haven't really talked about the recovery period or anything in depth about the surgery yet...my head is still spinning pretty fast simply trying to wrap my brain around all of the fun things chemo has to offer.

35 Radiation treatments will round out the first phase of the treatment plan and we haven't really went much farther than this in our discussions.

 

The blanket in the picture was an anonymous gift that I discovered the gift giver after investigation.  I picked this one for the first treatment because my Aunt Con delivered the blanket the night before my first appointment with my gynecologist.  I laid in my green chair and traced the names of my babies and prepared to fight.  Thanks, Rich.

His one and only goal:  Make sure we walk many long halls together until we are old and gray.  He's doing everything in his power to make it happen.